Tuesday, September 28, 2010
"5. Avoid overmothering
Certain physiological things happen as a result of stress or grief. The normal circuits in the body are altered. The caregiver, as well as the patient, is damaged, in crisis, and sometimes things inside their brains don't work they way they normally would. Do not repeatedly tell the caregiver to eat or sleep. They cannot. There are operating on adrenaline, especially in the early stages. Food is only fuel, and sleep is hard to come by. And don't try too hard to pry the care-giver away from the patients bedside for a bite or a walk around the block. They may not ever want to leave their loved ones side, and that's just fine. But also remember that if they say they don't need help with anything, they DO. Don't be afraid to take charge in non-threatening ways to ease their daily burdens.
While I was camped out during Bob's stay in the ICU, my friend Lauren knew that I liked decaf lattes, sushi, brownies, and the special corn and crab soup from the hotel room service. In the early days of our own crisis, I would return from the hospital, shattered and in shock and find these items waiting for me. She didn't nag me to eat or urge me to care for myself; she just took care of me quietly, because she knew I wasn't thinking about food.
6. Be sensitive to what they need to hear
Don't be afraid to acknowledge the person's pain. It's okay to say "This really stinks, but I'm here every step of the way." The most helpful comments you can make involve letting the patient or friend know they are heard. This is a delicate balance because you don't want to minimize things with trite greeting-card philosophy, but nor do you want to underscore the dire nature of the person's situation. This is where you need to use your sixth sense and assess where that person is, emotionally, at any given moment. It may sway from hour to hour. Take your lead from them about what you think they need to hear. It's always comforting to be told, "Let's talk about you for a moment--I'm here to listen if you feel like unburdening."
7. Think practically about what people really need
Stuffed animals, large objects, and flowers in the hospital are cheery, but they often translate into things that just need to be moved from room to room, or take up space in already cramped quarters. Consider practical gifts instead, like pajamas, a luxury soup, thank you notes, a new toothbrush, or slippers. Also, don’t tell the patient or caregiver to call you if they need anything. That puts the burden of asking for help on them. Instead, suggest something specific you can do to help out: a ride for the kids or a sleepover, a dinner brought to the house (without dishes that need to be returned), grocery shopping, cutting the lawn, or walking the dog. Make decisions on the details as much a possible. This includes whether or not they like chicken or fish. Just do it!
8. Choose your words and actions wisely
Don’t expect the patient or caregiver to immediately return your phone call or email. All of their energy right now is on themselves and their immediate family. With each concerned phone call I got from a friend who told me they just needed to hear my voice, I felt more inadequate. “Call me!” well-meaning friends would plead into my answering machine. All that did was pile one more ounce of guilt and failure into my shoulders and add to my to-do list another thing I knew I wouldn’t be able to accomplish. If you need to reach out in the middle of a crisis just leave a message that starts with “you don’t need to call me back, just wanted you to know I was thinking of you."
Also, don’t approach the patient with tears in your eyes or what I call the “sympathy face” (the hangdog look that says, "you poor thing bless your little heart”) This makes the person feel as though they have to use precious energy to buck YOU up.
9. Be there for the long haul
In the first days and weeks of a crisis, people come out of the woodwork, flooding with offers to help. But the real work begins when all the neighbors have gone back to their own lives, and the patient and family still need occasional support. Think of sending a thoughtful gift then, at a time when the family or patient can focus more fully on the beauty of the item. As the weeks pass it is also a time when the patients feels as though many people have retreated; there is no one gathered in the kitchen anymore, no one answering the phone. Simple gestures thru the long haul will make a big difference after the crush of the crisis and will let them know you are still thinking of them. To be needed in that way is perhaps the greatest honor of being a true friend."
Monday, September 27, 2010
Thoughts on how to "be there"
Most people who haven't experienced a tragedy or serious illness at close range have no concrete idea of how best to approach the person who is suffering. They don't know exactly what to say or what to do. Everyone wants to get it just right, but it's frequently hard to gauge what is appropriate. Sometimes these emotions can be paralyzing. But it is crucial to not hang back: the bravest and most wonderful thing you can do is to be there for someone else, even if this takes you completely out of your comfort zone. It is essential to acknowledge what is happening. Call people or reach out when you learn they are ill or going thru a difficult time. Don't give up on them if they try at first to push you away.
When Bob was injured, I was surprised by some of the people who stepped into the void in amazing ways to help. In many cases, they were not necessarily the people I had expected. For the people in the vortex of the crisis it's important to keep in mind that just because some folks don't raise their hands to help doesn't mean they don't care. An inability to cope with what you're going thru could simply mean that friends are nervous or anxious about how best to approach you and tackle the situation.
2. Help them feel "normal"
When Bob was in his coma, one of the many fabulous gifts of help came from my friend Kitty. We were trying to convert family videos to DVD format to play in Bob's room so he could hear the children's voices, but we were having trouble. Kitty just showed up took the tapes, didn't ask pointed questions or demand information about Bob's condition. She told me about her kids and her husband. She entertained me with stories about her workplace. She just came and helped. Two days later the tapes arrived at the hotel desk all transferred onto DVD's.
My friend Colleen sent me a certificate for a massage, which I ultimately did use (even though I worried about Bob the whole time.) Rebecca arranged flowers near the bed, and organized and prioritized all the mail. She never asked me one prying question. Instead she waited til I was ready.
These simple, calming acts and my friends' way of treating me as "normal" were exactly the tonic I needed. In the midst of the tornado raging around my family, I loved it when people talked to me about their aging parents or the fact that their child needed glasses. My world was so unimaginable. I had lost the language of reciprocity. Sometimes when a person's life has changed so much, they want to hear what normal sounds like; they want you to treat them as if their world is just like it used to be.
3. Recognize the power of the human touch
Don't be afraid to make physical contact. Most illnesses or injuries are not contagious. Touches and hugs are one of the most healing things one person can do for another. Everybody wants to feel like a human being. A loss, illness, or injury gives people a sense of being exiled from the herd, so do whatever you can to make that person comfortable---overlook tubes and machines, get down on their level and look them right in the eyes-- just focus on that loved one or friend as an individual. Simple acts can go a long way toward restoring dignity.
4. Establish a healthy information exchange
This means three things: 1) Not demanding information from a patient or caregiver 2) Sharing information that may help and 3) Knowing what to keep to yourself.

by Lee Woodruff from Perfectly Imperfect
#5-9 coming next......
Tuesday, August 31, 2010
Splash
Surgery begins at 9:30 am.
Praying for a miracle.
No matter what, I know God's got it.
I have a peaceful heart.
(I think the prayer below WORKS ;)
So hear we go.....
plugging my nose
and
jumping in.
Friday, August 20, 2010
Lord, give me today the things I need for today.
Because we are there.
The last weekend before my parent's anniversary party.
And THEN
Wednesday is Sept 1st. (My stomach just knotted up.)
There's a lot to do.
Two doctor's appointments, blood work, signing scary papers, explaining, planning,
Combined with--
Family flying in, happiness, hugs, jokes, laughter, decorating, celebrating, living.
It's gonna be a weird week. It's probably good to keep my mind occupied. But the mixture is making for some crazy roller coaster emotions.
I hope I can hold it together.
Saturday, August 14, 2010
A Wink and a Smile
Of course, I’ve been all talking it up to SaraRose like “on Friday we’re going to the funnest pool ever! There are slides and waterfalls and all sorts of things to explore!” And I, myself, am getting pumped just picturing this dream checked off my list while she and I have a blast with the few other toddlers and moms who might be there.
Yea.
So as we drive around the corner yesterday, I see it--the massive pool and the silly slides......
…..and it is not the vision of my dreams.
But rather an enormous waterworks filled to the brim with big, loud, crazy campers and kids with their yelling chaperones. It’s so jam-packed I can’t even spot water, just bathing-suited masses of humanity. And pumping loudly into my car window I hear “Who-Let-The-Dogs-Out?-woof-woof-woof-woof -woof” from the massive pool speakers.
And then.
Then I hear the life-guard announce, “Little girl’s bathing suit contest starts in ten minutes!”
Oh. my. word. Get me the heck out of here!
I whipped the car around and started laughing.
Because I crack myself up. This is not the waterpark of my dreams. In fact it’s quite the opposite. And I’m so amused, because this is one of my quirkiest habits: I have super high expectations when I’ve wanted to do something for a long time. I get a perfect picture in my imagination of the way all of it is going to go down.
And I know that every once in a while it’s really, REALLY good for me to get a big old dose of reality. It’s almost like God looks down, winks at me and says, “Kristen, you ain’t missin as much as you think you are!”
So back to our sweet, quiet little condo pool we went with no “little girl bathing suit contests” in sight.
and we all had a fabulous time. ;)
Friday, August 13, 2010
The Check List (full of blessing)
Since I've known for a while I'd be facing this, I've had a mental check-list of things I hoped to enjoy before it happened. And God has given me them and then some.
So be thankful with me as I share some of the list of blessings I've been able to check off before heading into this next hurdle.
*Awesome new camera: check!
*Photography class: check!
*Being a happy wife again: did-my-best-check ;)
*Family Disney trip: check!
*Grocery shopping: check!
*Going to the movies: even-made-it-to-a-Broadway-show check!
*Growing closer to God: by His grace...check
*Weekend away just me and the hubby: check!
*Consistently involved at church/small group/activities: check!
*Cultivating friendships: check!
*A few updates around the house: check!
*Spending time at home just me and SaraRose (there are a lot that have to do her so bear with me here ;) *Library time, *picking her up from Sunday School, *rocking her, *riding a carousel with her, *hanging together with other moms with toddlers: all-that-and-more-check!
and last but certainly not least...
(drum roll please)
*Losing post-surgery weight gained: 2 pounds-to-go-check!
Woo hoo! Thank you, Lord. Of course maybe there is more I wish I could have done or whatever. But God's sovereignty is perfect. And I rest in that. And in the fact that He owes me nothing. And yet, He gives because He loves me.
Thursday, August 5, 2010
5% and a laugh
I end up stifling a laugh thru most of the hour! I wish you were a fly on the wall to enjoy it with me. ;)
HOWEVER~ I also met my 5% goal today! I got a sticker and a few grudging claps.
Laughable or not, I gotta give WW major props! 8 pounds down! SU-weeet!! because as we at Weight Watchers like to say (or chant, if you're in meeting mode) "NOTHING TASTES AS GOOD AS BEING THIN!" (grin).